Archives for posts with tag: Multiple Sclerosis

Dion moved home two weeks ago yesterday. Today I called an ambulance for him. This is the roller coaster that we too often find ourselves on.

I will start by saying that Dion is safe and receiving good care. He definitely has an infection. We are also waiting to hear the results of other tests.

At the house, the renovations I have described here before are nearly done, but not quite. We found ourselves rather suddenly having a firm date for Dion to move back, even though the bathroom had no fixtures in it yet. For me, this produced serious stress and a worry that Dion could not have the kind of homecoming we had previously envisioned. We also still needed to work out his care plan, one that would create a safe environment for him and respite for me.

Move Day was a beautiful spring-like Wednesday. I know there was something powerfully symbolic about that: Dion was experiencing home-coming that felt like new birth. In that moment the lack of a bathroom seemed minor. After all, it would be the first time all three of us would sleep under the same roof in over a year.

Fresh life also brings growing pains. It would be unfair to not identify how significant a transition this is for our family, or how difficult it is to not have a working bathroom. We have personal support workers coming every morning and evening. If something goes wrong in the middle of the day? We’re still trying to figure out what a proper Plan B is, and it feels strange to not have one, two weeks in.

Which brings us to today. One of the paramedics took my hand as he was leaving the ER and said, “I hope you all get over what seems to be yet another speed bump”. We’re trying. There is still humour as we sit in the hospital. We are aware of a peace, love, and grace that surpasses our understanding. And this is hard. The term we often use at The Dale for a situation like this is ‘brutiful’. Brutal and beautiful mashed together.

Your prayers and good thoughts are appreciated: for recovery, for a solid Plan B, for strength, and for grace to mark this whole brutiful thing.



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There’s a four-wheel loader, otherwise known as a Bobcat in my backyard. The basement has been demolished, revealing strange things like no framing or insulation along certain walls, wood panelling, and linoleum tiles. A film of dust covers everything, at least on the first floor. Orange fencing surrounds the front yard. And maybe most traumatically, the porch is gone, leaving the porch swing beached for now.

Renovations have begun.

I am grateful that my brother Logan is our contractor. We communicate easily and have the same vision for things. One day six of our friends showed up to help Logan get all of the debris into a bin. It got done so quickly, that some of them were able to stay and continue working, notably taking down the drywall from the ceiling. To say I am thankful is an understatement.

As many of you know, Dion has not been living at the house since January. Multiple Sclerosis, though constantly present, reared its head in a dramatic way for him at that time. Since then he has been adjusting to a new normal at three different facilities, Michael Garron Hospital, Bridgepoint, and now Bellwoods. This period has been a very difficult one for him, and for me and Cate. I don’t quite know how to describe it all. Suffice to say, while there are good things happening, I am also scared, sad, and tired.

The plans for the house include digging down and underpinning, putting in a lift from the main floor to the basement, a barrier-free washroom, and space for a hospital bed. We have no idea when it will be done. Currently Dion is receiving good care at his new place, and outpatient physiotherapy at Bridgepoint.

With everything going on, I have chosen to be pretty quiet here lately. I haven’t known what to write, even though writing often helps me sort out my thoughts. I am trying to live in the tension of a life that is full to the brim, and some days it all feels like too much. I’m looking for ways to rest and am eagerly anticipating having the month of August off from work. There is a lot to process, and I’m hoping for a little more space in my brain to do just that.

I do wonder if there is something symbolic about having to tear down old things in order to make something new. As strange as it is to have a Bobcat parked where my car usually is, there is something exciting about it all. Things are happening. And that, however messy it is and nervous it all makes me, is good.

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